TOP Priorities for the management of syndromic hypermobility

Thanks for your interest in this research study from the Hypermobility and Performance Lab at the University of Sydney Faculty of Medicine and Health. We're surveying hypermobile Ehlers-Danlos Syndrome (hEDS) patients and clinicians who treat people with hEDS.

Patients and/or Clinicians: If you would like to participate, please enter your details here to register for the survey. >>

We're studying the top priorities of patients and clinicians re: hypermobilie EDS, and we'd love to include your insights, perspectives, and voice in our survey.

HREC Approval # 2018/838


When you enter your details and click the button, you will get immediate access all the information about the study, including who to contact if you have any questions.

Thanks again for your support and for sharing your voice! From Jade and the Hypermobility research team.

Hypermobile EDS Patient or Clinician? Please complete our survey!

If you're an Adult Patient diagnosed with hEDS (or any previous names: EDS3, EDS-hypermobile type, joint hypermobility syndrome), or a Clinician who works with these patients... Please enter your details below and we'll send you all the info.